Ryan had difficulty walking, but wasn't diagnosed until he had fevers of unknown origin. He went through 5 rounds of high dose chemo, then surgery with Dr. Laquaglia to remove his left Adrenal gland and the primary tumor.
After that, he underwent double stem cell transplant with experimental T-cell augmentation.
Unfortunately, after double stem cell transplant he still had a small amount of refractory disease left in his bone marrow.
We took him back to Sloan Kettering to receive their experimental monoclonal antibody, 3F8. He cleared his disease after 2 rounds of 3F8, and received a total of 10 rounds. 3F8 is a very painful and difficult treatment, but it works!
Ryan likes skiing, and is very good at school with a 100% average on his 1st grade spelling.